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Getting started in… T ackling the practicalities of research Professor Katie Webb, Cardiff University Professor Hugh Alberti, Newcastle University 17th April 2024 Twitter: @ClinEdResearch #ClinEd Website: http://tiny.cc/clinedresearchSession Overview PPI thoughts Funding thoughts Ethics thoughts Other practicalities Small group discussions Q+AWhat do you want to know? Please use the chat box to introduce yourself and to write any questions you would like us to cover PPI – what is it? Activity: What is PPI? Use the chat function to share some ideas Slides: ©KatieWebb2024 Public and Patient Involvement • Involvement is where members of the public are actively involved in the design and conduct of research. For example, as co-applicants, as a member of the advisory group, or as part of the research team developing the data, and/or disseminating the results. (NIHR) analysing • “Patient and public involvement (PPI) in research is where research is: “being carried out ‘with’ or ‘by’ members of the public” not just “‘to’, ‘about’ or ‘for’ them”. Involving the public in research in this way is important for both moral and pragmatic reasons.” (Bagley, et al) Slides: ©KatieWebb2024 Why incorporate PPI? Activity: Why might you want to incorporate PPI in a project? Use the chat function to share some ideas Slides: ©KatieWebb2024 Why incorporate PPI? • PPI can improve the quality of research (includes important perspectives and experiences) • Relevance and value • Study processes – recruitment, retention, information sheets • Interpretation of results • Impacts – dissemination, sharing of results with the public Slides: ©KatieWebb2024PPI - Quality Source: Adapted from Juran Instituteand Metric Champion Consortium (MCC) 2018 © Cyntegrity.com Slides: ©KatieWebb2024Examples - PPI Slides: ©KatieWebb2024Example: Improving engagement / communication Source: Barnfield et al (2017) Slides: ©KatieWebb2024Example: Improving engagement / communication Source: Barnfield et al (2017) Slides: ©KatieWebb2024Example: Improving engagement / communication Source: Gemmell et al 2012 Slides: ©KatieWebb2024 How can you incorporate PPI? Activity: How can you incorporate PPI in a project? Use the chat function to share some ideas • Advisory board • Research team (e.g. co-facilitator) • Co-production (e.g. instruments) • Expert - Review / feedback Slides: ©KatieWebb2024 Arranging PPI Who/Access: • University – Public Considerations • Designed in involvement and • Ethics engagement groups • Hospitals Patient • Permissions Partnership • Training • Research panels • Time • Expert patient groups • Duty of care • Young people/ parents • Peers • Post project - sustainability • Placing adverts in settings • Ask! Slides: ©KatieWebb2024Funding sources Please us the chat box to jot down any funding sources you have applied to for help with clinical education research (whether successful or not!)Funding thoughts • Do you need any? (nb – transcribing) • If so, what for?Funding sources • Your local institution – ask! (“Shy bairns get nowt”) • ASME: Various awards • NIHR: IPF – ACF – ACL etc. • Professional colleges/organisations (e.g. RCGP) • Wellcome…. • ….Ethics thoughts • Why? • Do I have to??? • How?Why seek ethical review To protect and preserve your participants’ rights To respect your experimental objects or sources To ensure your activity is within our current moral code To ensure your findings will be accepted and published We would not do anything ‘unethical’ in our clinical workDo I have to? YES If its research not evaluation Is your project research? http://www.hra-decisiontools.org.uk/research/How to? Approach your local institution – often have ethics toolkits Ask! Does your project require HRA NHSREC approval? • Do I need NHS Ethics approval? (hra-decisiontools.org.uk) Will your study involve potential research participants identified in the context of, or in care), including participants recruited through these services as healthy controls?Other practicalities • Other permissions (University, Trusts, etc) from the gatekeeper • Collaborate – local and national - encourage multi-centre studies • Think about dissemination early (presentations/publications)Group Activity: In your group consider a project either hypothetical or something you might in the future be involved in. How could PPI help in this project? Who would be involved? How will you invite, access these people? In what way might these individuals be involved? When might they be involved? Do you need funding? If so for what? What ethical considerations might you have Slides: ©KatieWebb2024Q and A Slides: ©KatieWebb2024Any questions…?